Nursing homes have changed dramatically over the past
several decades. These changes have been driven by government regulations and
consumer pressures. Today’s nursing homes are highly regulated, high-quality institutions
for the care and treatment of older adults who have severe physical health and/or
mental disabilities.
Who Lives in Nursing Homes?
Almost half of all people who
live in nursing homes are 85 years or older. Relatively few residents are
younger than 65 years. Most are women (72%), many of whom are without a spouse
(60% widowed) and with only a small group of family members and friends for support..
Disabilities
Some type of disability or impairment with activities of daily living (ADLs) is the most common
reason that older people live in nursing homes. Not surprisingly, people living in nursing homes generally have
more disability than people living at home. About one fourth (25%) of nursing-home
residents need help with one or two ADLs (eg, walking and bathing), and three fourths
(75%) need help with three or more. More than half of residents are incontinent
(either bowel or bladder), and more than a third have difficulty with hearing
or seeing.
In addition to physical problems, mental disturbances
are common in nursing home residents. In fact, dementia remains the most common
problem, and affects an estimated 50%-70% of residents. In addition, more than
three fourths of nursing-home residents have difficulty making daily decisions,
and two thirds have problems with memory or knowing where they are from time to
time. Problematic behaviors are also
common, shown by at least one third of nursing-home residents. These behaviors may
include verbal and physical abuse, acting inappropriately in public, resisting necessary
care, and wandering. Communication problems are also common—almost half of nursing
home residents have difficulty both being understood and understanding others.
Depression is diagnosed in 20% of nursing home residents.
Length of stay
Although disability is common
among nursing home residents, the length of stay is really quite variable. Twenty-five
percent of people admitted stay only a short time (3 months or less). Many of
the people who stay for a short time are admitted for rehabilitation or for
terminal (ie, end-of-life) care. About half of residents spend at least 1 year
in the nursing home, and 21% live there for almost 5 years. Interestingly,
function often improves in many of the residents who stay for longer times.
Population trends
The number of people admitted to
nursing homes in the United States has increased since 1994. Most people are
admitted to nursing homes after being discharged from a hospital after surgery
or a sudden illness. Unfortunately, nursing-home residents also often return to
the hospital with sudden medical illness.
Without a breakthrough in the
treatment of dementia, the number of people 65 and older living in nursing
homes will likely double by the year 2020. Interestingly, the occupancy rates
in nursing homes have gone down over the past several years, so that the
average nursing home is less than 90% full. Generally, this is thought to be
because there are other options for long-term care, such as assisted living
facilities. Other social and financial causes are also likely. Surprisingly,
the greater availability and use of home-care services allowed by Medicare have
not consistently decreased admissions to nursing home.
Risk factors for admission
There are several risk factors
for admission to a nursing home, including the following:
- age — The chance of being admitted to a nursing home
goes up rapidly with age. For example, about 20% of people 85 years and older
live in nursing homes, compared with just 1.4% of people 65-74 years of age.
- low income
- poor family support — especially lack of spouse and
children
- low social activity
- functional or mental difficulties — can even be used to
predict permanent placement
On the other hand, certain
factors do not seem to affect
nursing-home admissions. These include the following:
- caregiver education and support — has not been shown to
decrease or greatly delay the need to send people with dementia to nursing
homes
- the use of community services by people with severe
disabilities — has not been shown to necessarily decrease the chance of being
admitted to a nursing home
Not surprisingly, older adults
with positive attitudes toward nursing homes are more likely to use them.
Nursing Home Characteristics and Financing
Currently there are 17,000 nursing homes with a total
of 1.8 million beds in the United States. These hold 1.6 million residents and discharge
2.4 million residents every year to home, hospital, or hospice care. Of these 17,000
facilities, 65% are for-profit, 25% are not-for-profit, and 10% are government
nursing homes. The average nursing home operates 107 beds, with some having more
than 200 beds. A little more than half of all nursing homes (56%) are part of a
chain.
Nursing homes are increasingly
offering medical services similar to those offered in hospitals after surgery,
illness, or other sudden medical problems. Older adults need a higher level of
care, and hospital stays are shorter than they used to be. Medical services
vary a lot among nursing homes, but include kidney dialysis, orthopedic care
(care for muscle, joint, and bone problems), respiratory support, support after
surgery, rehabilitation, intravenous therapy and antibiotics, and wound care. Traditionally,
these services have been available only in hospitals and rehabilitation centers.
Currently, $90 billion is spent annually on nursing home
care in the United States. This figure is expected to increase to $150 billion
by 2007. Where does this amount of money come from? (See table.)
|
Sources and Amount of Nursing-home Spending
|
|
Public Programs
|
Private Sector
|
|
Medicaid
|
48%
|
Out of pocket
(paid by patient)
|
31%
|
|
Medicare
|
12%
|
Health insurance
|
5%
|
|
Other
|
2%
|
Other private funds
|
2%
|
|
Total
|
62%
|
Total
|
38%
|
Almost one third of residents are eligible for Medicaid when
they are admitted to a nursing home. Another third eventually qualify as their financial
resources are used up.
Under the Balanced Budget Act of
1997, Medicare payments to skilled nursing facilities are based on a patient’s skilled
nursing needs and rehabilitative potential, rather than on cost. For example,
nursing homes must keep written records of the patients’ progress to ensure reimbursement
for rehabilitative therapy, which is needed by many nursing home residents. Nursing
homes are also required to have careful and thorough admission policies for Medicare
beneficiaries. (See also Insurance,
Financing, and Costs of Health Care)
Choosing a Nursing Home
Your family doctor or other health care provider (eg, home
health nurses and social workers) can provide recommendations for nursing homes.
Older adults and/or family members should try to visit as many places as possible
to get a sense of what the place is like, including the overall atmosphere and
quality of care. Using a checklist can help
you evaluate quality, the range of services, convenience, and costs. Your visit
may last an hour or two so that you can meet and talk with the admissions
officer, nursing home administrator, head nurse, and social worker. Remember
that no nursing home is perfect, and all will likely be very different from the
current living situation.
Nursing Home Checklist
- Is the nursing home clean? Are there any unpleasant
smells?
- Is it well maintained?
- Do the residents look well cared for?
- Are the rooms adequate?
- What recreational and private space is available?
- Are there safety features, such as railings and grab
bars?
- Is the home licensed by the state and certified by
Medicaid?
- How many nurses and nursing assistants are there
compared with how many residents?
- Do the administrators and medical professionals have
special training in geriatrics or long-term care?
- Are key professionals full-time or part-time?
- How long have the administrators and medical professionals
been with the nursing home?
- What type of medical coverage is provided?
- How close is the nursing home to family members? How
close is it to the nearest hospital?
- What is the food like?
- How much do basic services cost? What services are
covered?
- What additional services are available? How much do
they cost?
- What happens if a person runs out of money and needs
medical assistance?
Nursing homes may often seem scary and depressing, and
moving into one can fill people with a sense of betrayal and failure. Family
involvement is important in helping the older person make the transition to a
new living arrangement. Contrary to the stereotype, families do not abandon
their loved ones by placing them in a nursing home. In fact, only a few nursing
home residents are truly without any family. Family members are encouraged to
visit residents regularly and to be involved in the total care of their older
relative. Family members can offer companionship and assistance with the basic
activities of daily living, and they may be better able to communicate the
needs of the resident.
Healthcare Providers in Nursing Homes
Residents of nursing homes today are “sicker” and more
disabled than nursing home residents were in the past. This emphasizes the
importance of quality medical care within nursing homes. The healthcare team within
nursing homes is made up of a variety of skilled professionals, including nurses, physicians,
nurse practitioners, physician assistants, and medical directors.
Nurses
Nurses are a key member of the medical staff within
nursing homes. Nursing assistants are also very important, because they provide
much of the routine care. The quality of care is linked to the following
factors:
- the total number of hours that nursing care is
available
- the number of professional nurses compared with the
number of nonprofessional nursing staff members
- the number of nurses compared with the number of
residents
Although it would be ideal to increase nursing staff
levels in nursing homes, this has not happened for a variety of reasons. Two of
the major reasons are:
- lack of funding
- difficulty hiring and keeping skilled nurses and
nursing assistants
High staff turnover rates (over 50% every year for professional
nurses) have also been linked to a greater number of nursing home residents
being readmitted to a hospital.
Physicians
The physician is a critical member
of the medical team. He or she manages the overall healthcare of the residents.
Ideally, the physician should be a permanent employee of the nursing home,
preferably specializing in geriatric medicine (medicine for older patients). This
type of permanent staffing arrangement is thought to deliver a better quality healthcare,
because the physician is involved in all aspects of the nursing home. Usually,
this improves both staff communication and treatment of residents. Some
evidence also suggests that nursing home residents are hospitalized less often
when the nursing home employs a limited number of dedicated physicians. The
quality of medication administration within the nursing home also increases
when nurses, physicians, and other members of the healthcare team regularly
discuss patient care and treatment.
Nurse practitioners
and physician assistants
Nurse practitioners and
physician assistants have become more involved in the primary care of nursing home
residents. These health professionals are typically nurses who received
additional medical training, so that they can diagnose and treat routine
illness with oversight by a physician. Studies suggest that nurse practitioners
and physician assistants, acting together with the primary care physician, can
achieve the following:
- provide better care
- improve resident satisfaction with care
- lower rates of hospitalization
- prevent increase in nursing-home costs
However, the nurse practitioner
or physician assistant must always be supervised by a qualified physician. The
physician provides advice and is available to manage and care for residents
with more serious or complicated conditions.
Medical directors
In many ways, the quality of medical care in the
nursing home is determined by the medical director. The medical director works
closely with the entire staff. He or she must be aware of and up-to-date on the
laws, regulations, and organizations that affect nursing homes and long-term
care. The medical director, together with the medical staff, sets quality
standards for the nursing home through specific policies and procedures. The
medical director must make sure the nursing home meets and follows all relevant
state and federal regulations and guidelines. He or she must also work with the
nursing home administrator and director of nursing to keep the staff working as
an efficient team. Certification for medical directors after completion of a
formal course is now offered through the American Medical Directors
Association.
Healthcare Quality Issues
Extensive nursing-home reforms were enacted as part of
the Omnibus Budget Reconciliation Act of 1987. These regulatory changes
established training guidelines and minimum staffing requirements for nursing
homes, and also strengthened the rights of residents. For example, the new laws
limit the use of restraints and medications as a way to control resident
behaviors. These laws also required that all nursing home residents receive a
comprehensive assessment at specific intervals or times. This comprehensive assessment
is known as the Minimum Data Set (MDS).
How is the Minimum Data Set (MDS) used?
The MDS focuses specifically on clinical issues related
to quality of care. If any problems or potential problems are identified, the
healthcare team must review the protocols used in the care of the residents. These
protocols outline standard diagnostic and treatment plans for the specific
problem(s) in question. In other words, they are practice guidelines that the
healthcare team is encouraged to use.
Measuring the overall impact on quality of care produced by
these regulatory changes has been difficult. The government has put a new set
of quality indicators in place (based on MDS items), in an effort to speed up improvements
in quality. Using this system, nursing homes can compare their individual
performance with regional and national averages. They can use this information to
help guide their efforts to improve the quality of care (see www.cms.gov).
Physician responsibilities
In addition to comprehensive assessments, the physician
must also keep clear records that indicate the need for all medications,
particularly those that affect behavior or mental function. If nine or more
medications are being administered (to one resident), the state government
flags the care for investigation. Unnecessary medications are prohibited. In
this situation, unnecessary medications are defined as those that are given
under any of the following conditions:
- at too high a dose
- for excessive periods of time
- without adequate monitoring
- without adequate reason
- in the presence of side effects or other reactions that
point to the need to stop using the medication or to decrease the dose
In addition, specific types of medications have been
banned from use in nursing homes. If these banned drugs are administered
without proper reasons written in the patient’s record, the state government will
issue a citation.
Medical Care of Nursing-home Residents
The medical care of nursing home
residents is demanding and challenging. Many nursing home patients are
physically and psychologically frail, which makes treatment more complicated. The
most common health conditions of older patients in nursing homes are dementia,
heart disease, high blood pressure, arthritis, and stroke. Other common problems
include infections, urinary incontinence, falls, fainting, depression,
malnutrition, and pressure ulcers.
Often, nursing home residents
have more than one medical condition. Multiple conditions often mean multiple medications.
Unfortunately, multiple medications increase the chances of having a bad
reaction to a medication as well as other medical complications. Family members
often are not prepared for these things to happen. Instead, complications tend
to make people resist any treatment,
which may actually end up decreasing the quality of life and independence of
the resident.
The overall clinical care and the way specific problems are
managed must be individualized for each patient. The approach can vary enormously
from one person to another, ranging from measures that increase the patient’s
comfort to numerous diagnostic tests and treatment. Diagnostic issues are
another complicating factor. Many older patients have symptoms that are subtle
or not typical, making diagnosis difficult. In addition, many patients have
mental impairment, and the strict regulatory (government) requirements in these
situations further complicate medical decisions.
In addition to clinical care, health
care providers must be sensitive to the complex legal and ethical issues that
can arise. For example, think about a frail nursing home resident who requires
tube feeding. Some of the many considerations include the following:
- evaluation of the risks and benefits of tube feeding
- evaluation of the underlying illness
- the value system of the patient and the family
- the resources available in the nursing home
- staff acceptance of tube feeding
- the need of the patient’s family for specific educational,
psychological, and social support
Regardless of these difficulties—or perhaps because of—the
relationships that develop between patients, families, physicians, other health
care providers, and staff in the nursing home are among the most rewarding.
Patient preference
Understanding what each nursing home
resident prefers for care (based on his or her underlying value system) results
in improved care and overall quality of life. Surprisingly, fewer than one in
eight nursing home residents has discussed preferences with health care
providers. In addition, there is often a lack of follow-up on “future
directives,” such as living wills and do-not-resuscitate orders. These
directives may change after the person has been living in the nursing home for
a time. Some nursing homes have ethics committees that can help resolve any
ethical dilemmas that arise. These committees should have several members who
are experienced in different areas of healthcare. This ensures a broad opinion
and insight that is critical for care of nursing home residents, and especially
for end-of-life issues. (See also Legal and Ethical
Issues.)
Ways to improve care
Certain care strategies have recently
been developed that can further improve quality. Consultation with specialists
(eg, cardiologists, urologists, etc) may improve care and treatment results.
These specialist services should be part of the comprehensive, ongoing
assessment for each patient. Continuing education programs for physicians and
nursing staff may also improve care. However, special-care units, which have
become common in nursing homes, have not been shown to necessarily improve
quality of care.
|