We are pleased to announce that thanks to the work of AGS’s Public Education Committee, 24 of our tip sheets have been updated on www.HealthinAging.org. Covering topics such as winter safety, improving your memory, and geriatric syndromes, the HIA tip sheets provide easy-to-understand guidance for older adults and their caregivers on topics relevant to older adult health and well-being.
[This is a guest post from the Milken Institute School of Public Health at George Washington University.]
People are now living longer than ever before. This trend is most likely a result of health advancements throughout the 20th and 21st centuries. The treatment of heart disease and infectious diseases as well as immunizations have contributed to longer lives. By 2050, people ages 65 and older will make up more than 20 percent of the U.S population. Also by 2050, all living baby boomers will be over 85 years old. However, a growth in the aging population does not necessarily mean an increase in healthy aging. Aging comes with a need for long-term care, help with daily activities, and financial assistance. These needs increase for people older than 85. The growing aging population presents a new set of challenges for health care professionals and policymakers. But primarily, it will be seniors and their caregivers who must cope with the physical, emotional, and financial ramifications of aging.
Most people want to remain in their homes as they age. As a result, the demand for caregivers is expected to grow in the coming years. Currently, there are not enough caregivers to meet this demand. Many professional caregivers are underpaid and undertrained. Family members often have no training at all. As the percentage of seniors living in skilled-nursing facilities decreases, the role of caregivers will become even more important to the overall health of the aging population.
MPH@GW, the online Master of Public Health offered through the Milken Institute School of Public Health at the George Washington University, created the following infographic to help explain the economic implications of a growing aging population in the U.S. for older Americans, their families, and professional caregivers.
Nancy Lundebjerg, MPA
Chief Executive Officer
American Geriatrics Society
Bruce A. Chernof, MD, FACP
President & Chief Executive Officer
The SCAN Foundation
Are YOU at the center of your own health and care? It may seem like an obvious question, but it’s an important one to consider since our medical system has often focused on treating illnesses rather than caring for people with illnesses.
That’s because the medical system usually measures success as decreasing the negative effects of disease. That’s an important aim, but ask any person what “well-being” looks like and they’re likely to talk more about being able to live well in spite of disease. This divide can be especially difficult to navigate for older adults with complex health problems: owing to the status of their health, older people may feel like they have a limited say in how they are treated by a network of primary care providers and specialists, with various family members and caregivers expressing their own points of view, too.
How do we better connect to people when it comes to elder health and care? A group of experts recently convened by the American Geriatrics Society (AGS) with support from The SCAN Foundation has taken steps toward answering that question by helping to define an innovative approach to health care: person-centered care.
Based on a broad review of existing research, as well as findings from interviews with health and social service organization leaders, the expert panel defined person-centered care as “care in which individuals’ values and preferences are elicited and, once expressed, guide all aspects of their health care, supporting their realistic health and life goals.”
A person-centered care approach starts with gathering information about the values and preferences of a person in light of health status, with input from family or others important to the person when desired. When reviewed along with a traditional health assessment by a healthcare provider, this person-centered information is used to help shape and articulate specific goals based on what an older person wants and needs from care. Rather than being driven only by clinical outcomes, these goals are directed by how a person wants to function and what he or she hopes to accomplish when thinking about future well-being.
So what can you do to make health and care more person-centered? Well, the group of experts brought together by the AGS identified several “essential” elements of person-centered approaches to health care. While no two experiences of person-centered care will be the same (they are, after all, person-centered!), recognizing when and how you can discuss the following with your healthcare providers is an important step toward ensuring you’re at the center of your own well-being:
- An individualized, goal-oriented care plan based on your own expressed preferences.
- An ongoing review of your goals and care plan (including opportunities to reassess the plan regularly to address health status changes over time).
- Care supported by a team of healthcare providers with different kinds of expertise, and with you as a key member of the team.
- One primary contact on the healthcare team who is responsible for communicating information and coordinating care with you and all the other team members.
- Continual information sharing and communication between you, family, and all healthcare and supportive service providers.
- Education and training about person-centered care for providers and, when appropriate, for you and your caregivers.
The Health in Aging Foundation has some great resources to help you learn more about the importance of person-centered care. You can read about the expert panel’s research in one of the Foundation’s latest research summaries available here, and you can even use this quick-reference guide as a conversation starter between you and your healthcare providers. Want even more information? Check out materials from the AGS and The SCAN Foundation, too!
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Nancy Lundebjerg, MPA, is CEO of the American Geriatrics Society
Bruce Chernof, MD, is president and CEO of The SCAN Foundation
HealthinAging.org Offers Valuable Support for Caregivers all Year Long
November is National Family Caregivers Month. Even though it’s now December, it’s still a great opportunity to ensure that caregivers across the country get the recognition and resources they deserve all year long. 43.5 million caregivers—many of whom may be older adults themselves—provide care for someone over the age of 50, and 14.9 million care for someone who has Alzheimer’s or another form of dementia.
Caregiving is a full time job, often performed by family members whose responsibilities may also include a career, maintaining a home, parenting teenagers and sometimes helping to raise grandchildren—all in addition to caring for an older, vulnerable parent or other older family member or loved one who needs help with the daily activities of life.
The job of a caregiver can be extremely stressful, and can take a toll on a caregiver’s health, especially if the person being cared for has Alzheimer’s disease or dementia. In fact, some 50% of people who care for people with cognitive disabilities develop psychological distress.
You can’t be an effective caregiver unless you take care of your own health needs. You’ve probably heard the pre-takeoff speeches flight attendants give, about putting on your own oxygen mask before assisting others? It’s the same with your health. Seeing to your own mental and physical well-being helps you to take on the demanding task of taking care of a vulnerable older adult.
Here’s a place to start: The Caregiver Health Self Assessment Questionnaire, which was originally developed and tested by the American Medical Association. This questionnaire can help you look at your own caregiving behavior and health risks. With your healthcare provider’s help, this questionnaire can help you make decisions that may benefit both you and the person you’re providing care for. It may also improve communication and enhance your partnership with your own health provider.
This questionnaire is meant to serve as a guide only. Be sure to speak to your healthcare provider about any concerns you may have about the questionnaire or your results.
HealthinAging.org has many other tools and tips for family caregivers. These resources offer valuable support and advice when you’re caring for a loved one: